Get Started

GenomeConnect is open to adults (age 18 and older) and minors under the age of 18 who have the consent of a parent or legal guardian meeting at least one of the following criteria: 

  • Have already had genetic testing
  • Are considering genetic testing
  • Are a family member of someone who has had genetic testing

Connecting is easy and only includes the steps below:

Sign-up at GenomeConnect.org

Sign up at GenomeConnect.org for your personal portal account. We'll ask you some questions about yourself and tell you important details about what information we will collect, what information others can access, and what being a part of the GenomeConnect community entails.  If you agree, you will complete an electronic consent form and start connecting.

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Fill Out Your Health History

Our online questionnaire is designed to capture a snapshot of your overall health.  We want to know as much as we can about your health, from your head to your toes! Click here to learn more and see a sample of the survey.

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Share Your Genetic Testing Report

We use participants' genetic testing reports to collect important information about the genetic changes that may be listed there. Click for more information about uploading your report.

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Share Your Information

Once your information is in GenomeConnect, we will share it (WITHOUT your name, address, date of birth, or other identifiers) with other researchers and clinicians for the purposes of understanding more about how genes affect human health. As a GenomeConnect member, you will also have the ability to reach out (initially through project staff) to other GenomeConnect members based on a variety of factors, such as diagnosis, gender, location, etc.

Click here to be taken to the GenomeConnect page to register or login.