Sharing Resources For Clinicians

Clinicians looking to share genetic variant information and supporting phenotype information from their patients can submit data to ClinVar or inform their patients about enrolling in ClinGen's patient registry GenomeConnect. GenomeConnect participants are consented for broad data sharing with resources such as ClinVar.

ClinVar Submission

Learn about "Phenotype Only" and "Reinterpretation" ClinVar submissions.

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GenomeConnect Recruitment

Materials to help talk to your patients about ClinGen's patient registry GenomeConnect.

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Consent Resources

A customizable consent form and supplementary video for broad genomic data sharing.

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Clinical Lab Data Sharing List

View list of clinical labs who meet a minimum standard of data sharing. 

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