Stay up to date with what's new with GenomeConnect by reading our regular newsletters! 

Participating in GenomeConnect is relatively simple. Learn more about how you can get started or sign-up by visiting the GenomeConnect homepage.


  • Summer 2016 Newsletter - Read about participant matching feature, celebrating rare disease day and more!
  • Winter 2016 Newsletter - Read about the participant matching feature, additional research and resources, and what is coming up in 2017!
  • Spring 2017 Newsletter - Read about the updating your account preferences, the importance of uploading your genetic testing report, our new participant advisory committee and more!
  • Summer 2017 Newsletter - Read about data sharing, how to get a copy of your genetics report if you don't have one, and learn more about candidate genes!
  • Fall 2017 Newsletter - Read about the types of genetic changes and genetic test results, family history day, and genetic counselor awareness day. 
  • Winter 2018 Newsletter - Take a look at a timeline of genetic discoveries, read about how important it is to update your account preferences, and read about the difference between the exome and genome. 
  • Spring 2018 Newsletter - Read about data that has been shared through GenomeConnect, how to make sure your information is shared, and about Gregor Mendel the "Father of Genetics". 
  • Fall 2018 Newsletter - Read about how GenomeConnect participants can share their story with us, learn about participation to date, discover how we are working with other groups, review a summary of inheritance patterns, and read about things to consider before downloading data from at-home genetic testing.
  • Winter 2019 Newsletter - Read our participant update, learn more about mitochondria, find out how to update your GenomeConnect Profile, and review how GenomeConnect protects your privacy.
  • Summer 2019 Newsletter - Read our participation update, learn how to update consent when a participant turns 18, meet one of our team members, and learn more about candidate genes. 
  • Fall 2019 Newsletter - Read our participant update, review some genetics FAQs, meet a member of our team, and learn how you can better get in contact with us.
  • Winter 2020 Newsletter - Read our participant update (we have over 2800 participants!), discover more about ClinVar, review what chromosomes are, and learn how you can get involved on Rare Disease Day.
  • Spring 2020 Newsletter - Read our participant update, learn more about diagnosing rare genetic diseases, we have answers to the questions you have been asking, and meet our newest team members! 
  • Summer 2020 Newsletter - Read our participant update, learn more about inheritance patterns, explore how to give GenomeConnect the option to request your genetic test report, and meet our newest team members!